|Registered Charity Number 207711|
Information for participants and carers
Who is taking part in the SCOOP study?
Our study centres, in collaboration with a number of GP practices identified women aged between 70 and 85 years that were not currently on any medication for the prevention or treatment of osteoporosis. An invitation letter was sent to all the appropriate women registered with these GP practices, or a randomly selected sample.
How will information obtained for this research be used?
Over 12,000 women throughout the country have taken part in the study and have provided us with very useful information about their bone health and general health. The information will enable us to answer an important research question about whether a systematic screening programme helps to prevent fractures in older women. We expect the results to be available by 2015, and they will be publicised locally and nationally. A link to a summary of the results will be added to this page when they become available.
Any information that participants have given consent for the SCOOP study team to obtain will be treated in strict confidence. Participants’ names will not be included in any publications arising from the study, and we will ensure that individuals cannot be identified from details in reports of the study results.
The study team has obtained information about fracture events from a number of sources in order to compare the fracture rate of those participants in the ‘screening’ group with those in the ‘non-screening’ group. All data have been obtained in line with the written consent given by participants at the outset of the study. The data sources include annual participant questionnaires, GP practice systems, hospital radiology systems and data extracts requested from the Health & Social Care Information Centre (HSCIC). The co-ordinating centre at the University of East Anglia complies with the Data Protection Act and has provided assurances to HSCIC that adequate information security arrangements are in place for us to process and store patient data securely. For more information on how HSCIC make decisions on sharing information, please click here.
|Updated December 2015||ISRCTN55814835|